Thursday, March 1, 2012

Need Some Help PRINCESS-izing!

I have 3 very white chairs that need some personalized PRINCESS-izing.

I have thought and thought about this, but nothing is jumping out at me.

I would like to put the girls names on their chairs, and was thinking of putting the words "Princess" on the top back wood slat and the girls name on the bottom wood slat... but, how and with what? Or, are there other great ideas out there?

Each girl has their own princess and "princess stuff":

  • Gabriella is Cinderella
  • Annabella is Belle
  • Amaris is Aurora (Sleeping Beauty)

Please post your comments on the identical photo on my Facebook page.

Tuesday, February 28, 2012

New AFO's... Better "Times"!

Gabriella has had her new AFO's to help align her ankles since February, 24, 2012. In the last four days, I haven't had her stand to "time" her; but today, I decided I would see how she is doing.

In her second or third attempt, she stood for 3 minutes and 30 seconds. This is her second best time ever. Her longest time standing unassisted was for 6 minutes and 13 seconds. If I could find the chord to our video camera, I would share the video of that miracle. These photos are not actually of her standing with these times, but just standing with her first AFO's.

 I think our camera must have been on the wrong setting. Ugh! 
Either that or I was attempting to take photos and catch her at the same time. 

Most of her attempts at standing last zero seconds to 15 seconds, but, in the course of 20 minutes, she will now stand, 30 seconds to a minute several times... which is SO MUCH better than her "times" a year ago... when she might have been able to stand a couple times a day for a maximum of 4-6 seconds.

These miracles have come through fasting, believing and praying for her total healing... it is so exciting to watch God's miracles unfold and her healing to be manifested.

And, now with the appropriate custom AFO's, we may even see more improvements as I did today. Praising Jesus!

Sunday, February 26, 2012

New AFO's... What would YOU expect to pay?

Gabriella has been complaining for the last couple months of her AFO's (orthotics that she wears on her feet to help stabilize her ankles). They have caused horrible dime-sized callouses on her inner ankles over the last year. But, her physical therapist never seemed to have any concerns when I asked her about them, and I didn't know if this was normal or not.

But, there came a day that I thought... maybe a doctor that deals in pediatric orthotics might know. So, I made an appointment... Gabriella saw him a few days later. He told me that because she is hyper-mobile (basically her ankles, feet and legs can do things most of us didn't even know were possible), that the only type of orthotic she should ever have is a custom-made orthotic that goes just below her knees.

He asked me if I wanted a quote. I told him I didn't need one right now, that if she has to get them, she has to get them. I am thinking to myself though, these are going to be ridiculous... I bet they will cost $600-$800 because they are "custom." Just great!

Well, a couple days later, I got the phone call. The gal on the other end of the phone said, the total (not including the $500 doctor and facility charges) would be $3,816.20. I asked if she could repeat what she just said because I wasn't sure I had heard her correctly. Then, I repeated it back to make sure I had heard her.

Well, at the fitting appointment, I learned that, that price didn't include the socks. I told the gal I would give her $8 or $10 for the socks... and, I would like several pair. Then, I asked if that was about how much they were. She smiled and said, I think they are a bit more. She told me she thought they were more like $30 for a pair of socks. But, she ran to get the price sheet. She came back to tell me they were $64 for the pair of socks.

I smiled and told her that I would like the socks she just put on my daughter to be free. I thanked her in advance for figuring out how she could do this for our now $4,316.20 adventure.

Next time I guess I will find out the total price before anything is done first. OR, I will get her fitted somewhere else.